Monday, May 14, 2012

May GIG Meeting

Save the date for our next GIG Support Meeting
on Saturday, May 19th from 10am-12pm.
Our guest speakers are:
Health From The Heart, Dr. Julie Glass, ND
Elisha Joyce from Smarty Bars
Along with her yummy Smarty Bar samples, Elisha will
also be bringing her bars to sell. Cash or check only please!

Village at Van Mall Clubhouse
5000 NE 72nd Ave
Vancouver, WA 98661
Parking is on the street so please check the signs.
Don't forget to bring your food donations for the Food Bank.
See you there!

Ditch Amber


Ditch the AmberGIG has been informed that Domino's Pizza was given an Amber Designation by the National Foundation for Celiac Awareness (NFCA).  GIG would like to see this designation removed.  If you agree with our stand and would like to help, please sign your name to the petition listed here:  Ditch the Amber Petition  and help us let the NFCA know that we all stand behind the petitiion!

Cynthia's letter to the head of the NFCA follows:

Open Letter to Alice Bast, Exec Director, NFCA

May 12, 2012
 
Alice,

NFCA needs to remove the Amber designation from the Dominos "gluten-free" pizza. It is not safe for anyone requiring a GF diet for medical reasons. NFCA's reputation as a respected organization is suffering by giving a useless Amber designation to Domino's GF pizza. I implore you to consider the community we all support and want to help. Make the GREAT Kitchen's Amber designation disappear for good.

 
There is inherent liability in the GREAT Kitchens Amber designation that will have serious ramifications to the food industry and those of us who are working to make a difference for all persons living gluten free.

 1. Dividing the gluten free community is wrong. All persons living a gluten-free life style should have the same safe options in foods. Nearly the entire world accepts a definition for what gluten-free means. Stricter is better, but less than the standard is unacceptable. It goes against everything science tells us.
 2. The GREAT Kitchens Amber sign is a useless designation for restaurants that causes confusion and consequently mistrust of the restaurant industry and the organizations who are working so hard to help them. The Amber designation sets us back years on all the strides we have made to get the food industry to embrace safe gluten-free foods.

Thursday night I listened to the Jules' Gluten-Free Radio talk show with you as her guest. I have tried to make sense of your position for the GREAT Kitchens program Amber designation. I cannot understand why you are so passionate about a decal that sends mixed messages. The decal clearly states "GLUTEN-FREE" and 'Kitchen practices may vary". In a press release, you state NFCA's GREAT Kitchens Amber designation is for "restaurants offering gluten free products with varying kitchen practices, therefore suitable for those with gluten sensitivity." Yet the description of the program on your website states, "Amber Designation - ...requires ingredient verification and basic training of wait staff and managers." Kitchen practices may vary ... meaning those with celiac disease and non-celiac gluten sensitivity should ask questions and exercise judgment when dining at an establishment with an Amber Designation." These are two very different messages about the Amber designation.

Your biography states you are someone who is widely regarded as a celiac expert. I know you also attend many scientific meetings on gluten-related disorders. As such, your position that the Amber designation is helpful is even more alarming.

The GREAT Kitchen's Amber designation sends a confusing and dangerous message to gluten-free consumers, yet you stand boldly and confidently behind it. I would be concerned about a malpractice suit.

As a national leader and dietitian, representing consumers with gluten-related disorders, I feel the GREAT Amber designation is not only dangerous, but also irresponsible. Eventually this program will hurt our constituents.

I feel NFCA's messages related to what the Amber designation means for Domino's gluten-free pizza crust, compared to statements on your website and by Domino's are confusing. What does this really mean to consumers? Is it gluten-free or not? The sign says it is; the message says it is not. The sign does not say "not safe for celiacs, but may be ok for gluten sensitive persons". The sign does not say, "Buyer Beware." The sign does not say what you said on Jules' radio show about its meaning, or what Dominos disclaimer says. So if the disclaimer is not with the sign or GF pizza crust, what do you think an unaware consumer is going to think?

I believe it would have been better for NFCA to tell Dominos that the cross contamination of the gluten free crust is too great and that NFCA cannot endorse such a product as gluten free. Why would NFCA work to raise awareness of cross contamination by endorsing a cross-contaminated product?

Every time I read someone's post that they have no symptoms when eating Domino's GF pizza, I cringe and get angry. We have all heard the medical experts say many times that 'a lack of symptoms is NOT indicative of a lack of damage being done internally'. This is a major lawsuit waiting to happen. Stop using the GREAT Kitchen Amber designation now.

The celiac centers are also telling you this is a bad idea. Please listen to us all.

I hope that unnecessary harm will be adverted by NFCA taking immediate corrective action.
  
Sincerely,

Cynthia Kupper, RD
Executive Director
Gluten Intolerance Group

Saturday, May 12, 2012

Astaxanthin: Pretty in Pink?

Astaxanthin is the orange-red pigment that makes flamingoes and salmon pink. It's now being promoted as the next super supplement.
Promoted on talk shows and all over the Internet, astaxanthin is said to fight heart disease, reduce cancer risk, improve fertility, relieve reflux, ease joint problems, enhance muscle endurance, promote healthy skin and eyes, and slow aging. You name it, it does it--or so marketers say.
Astaxanthin is a member of the carotenoid family, which also includes beta carotene. Made by certain algae and other microorganisms, it's thought to help protect against ultraviolet rays from the sun. Crustaceans (like krill and shrimp) that feed on algae store the pigment in their shells. In turn, fish (like wild salmon and trout) that eat the crustaceans (or the algae) store it in their skin and tissue. Some birds, like flamingoes, have pink feathers due to the astaxanthin in their diets. Humans get it primarily from seafood.
Astaxanthin's main commercial use has been as a feed ingredient in aquaculture to make farmed salmon pink. It's also "generally recognized as safe" by the FDA as a colorant for use in a number of foods.
Where's the astaxanthin proof?
Research, mostly in animals and test tubes, has shown that astaxanthin acts as an antioxidant and helps reduce inflammation. A handful of studies in people have found that the supplements lower C-reactive protein (a marker for inflammation in the body) and blood pressure and improve aspects of the immune system. In a company-sponsored study in Atherosclerosis in 2010, astaxanthin increased HDL ("good") cholesterol and decreased triglycerides. In a more recent study in the British Journal of Nutrition, it reduced substances in red blood cells that, at least in theory, might be linked to dementia.
But the few human trials have been small and short term, with mixed results. Supplement marketers cite numerous studies on websites that sound promising but were not well designed and/or have not been published in peer-reviewed journals.
Moreover, the Natural Standard, which evaluates complementary and alternative medicine, gives astaxanthin a C rating--unclear or conflicting evidence--for its use for high cholesterol, male infertility, muscle strength, musculoskeletal injuries, carpal tunnel, and rheumatoid arthritis. There's limited or no research at all to support its use for eye problems, asthma, dementia, exercise capacity, sunburn protection, or other conditions for which it's promoted.
More red flags
We don't recommend astaxanthin. The supplements seem to be safe, but that's what we used to think about beta carotene pills, which, at high doses, were eventually shown to increase lung cancer risk in smokers. Not only is the science behind astaxanthin supplements less than solid, but interactions with some drugs, as well as side effects (including yellow- or orange-colored skin, orange or red feces, unwanted hair growth, lowered calcium levels, decreased libido, and male breast enlargement) are possible. You should be especially cautious about taking astaxanthin if you're being treated for hypertension or have asthma, parathyroid disorders, or osteoporosis.

-Berkeley Wellness Newsletter, University Of California

Thursday, May 10, 2012

May GIG Meeting

Save the date for our next GIG Support Meeting
on Saturday, May 19th from 10am-12pm.
Our guest speakers are:
Health From The Heart, Dr. Julie Glass, ND
Elisha Joyce from Smarty Bars
Along with her yummy Smarty Bar samples, Elisha will
also be bringing her bars to sell. Cash or check only please!

Village at Van Mall Clubhouse
5000 NE 72nd Ave
Vancouver, WA 98661
Parking is on the street so please check the signs.
Don't forget to bring your food donations for the Food Bank.
See you there!

Gluten Free Food Fair

Come to the Gluten Free Food Fair
Saturday, May 19, 2012  11am-3pm
$5 per person, $10 per family
Kids under 12 free

Mittleman Jewish Community Center
6651 SW Capitol Hwy
Portland, OR
(ID required by MJCC for entrance to facility)

A Fundraiser for GIG of Portland and McMinnville

Children

"Children are the anchors of a mother's life." -Sophocles

Sometimes It Really Is All In Your Head

The single blow that really can change your life. "Every time I turn on the news these days, it seems like there is another athlete coming forward with major mental health issues linked to a history of concussions—so many so that as of this week there are now more than 1,000 former NFL players suing the league for inadequate post-concussion care. Many of these concussions have caused former pro athletes to suffer from chronic traumatic encephalopathy (CTE), a degenerative brain disease marked by depression, dementia, and other Alzheimer’s-like symptoms.
Interestingly, 13 former NFL players—some living and some deceased—have opted to donate their brains to science, in order to allow researchers to study CTE and the impact of repetitive head trauma. One in particular, “Iron Mike” Webster, a star in the 70s, suffered depression and dementia, before dying at the age of 50 in 2002.  A close look at his brain revealed damage the equivalent of “25,000 car crashes” after a 25-year career. Sadly, the effects of CTE have proven so grave that many of these 13 donors died by either suicide or erratic behavior-induced accidents.
While most of us aren’t subjected to repeated blows to the head, accidents do happen—something all too familiar to me. In 2007 I suffered a concussion after a visit to the emergency room for an eye abrasion which was exceedingly painful. The young intern asked if I wanted something for the pain and although I told him I didn’t take drugs, he never-the-less slipped me some samples of two pain meds—a Motrin and Percocet—that he said would help relieve my discomfort, but to make sure and take them with food.
He then sent me on my way. I was staying with my closest friends in my hometown of West Hartford, Connecticut at the time. When I returned to my friends’ home, my eye was still so excruciatingly painful—whether it was open or closed—that I begrudgingly took the meds with some crackers before bed. I was in such discomfort that I didn’t bother reading about Motrin or Percocet. Motrin would have been bad enough, it is very caustic to the lining of the stomach, but Percocet—well, that turned out to be a potent narcotic-like med.
What I remember next is that I went to bed but got up in the middle of the night to use the bathroom. I remember feeling dizzy, woozy, and fainted—hitting my head on the sink in the bathroom. But somehow I managed to stumble back across the hall—where sometime later my friends found me sitting in a yoga position in front of the bedroom door. They quickly sat down with me, assessed the situation and knew I had severely bumped my head because there was blood all over the place. When I got up, I looked in the mirror and sure enough, I had a major cut down my forehead and when I smiled, I actually burst out laughing (I apparently was still high on the Percocet) because several of my front teeth had broken in half.
Needless to say, at 4 am we went back to the Emergency Room and I got ten stitches on my forehead, but not before the staff questioned me intensely regarding the “real” situation behind my eye abrasion in the first place. (They suspected, I guess, that I had suffered some type of domestic abuse. By that time the Percocet was wearing off and I was beginning to get upset!)
In the months following, I started having major trouble sleeping, suffered from anxiety and even experienced some kind of post-traumatic stress. This made me wonder about the magnitude of my fall, and as I’ve always done with my health, I started looking for answers. I poured over books and studies on the subject, tried various tests and products and met with both traditional and alternative experts. In doing so, it has become my opinion that concussions are simply not taken seriously enough.
What I wish I knew then that I know now:
An MRI is not the answer. Although helpful in identifying other serious concerns (i.e. skull fracture, hematoma, and contusion), traditional structural tests such as CT, MRI, and EEG are not useful in identifying the effects of a concussion as it is a metabolic rather than structural injury. A neuro-cognitive test like the ImPACT Test can provide a thorough evaluation. But, it’s important to act quickly—the ImPACT test should be administered within the first 24-72 hours. Find a local provider at www.impacttest.com.
What I did do that helped:

1. I saw several soft tissue experts that specialized in myofascial release. I especially benefited from the hiatal hernia adjustment I received and cranial sacral work.
2. I used L-tryptophan mid-day and before bed for calming and mood stabilization. As the precursor to serotonin, it also helped to alleviate insomnia. I used 50-100 mg of 5-HTP (which is one step biochemically away from serotonin) and sometimes straight tryptophan—500-4,000 mg divided throughout the afternoon and evening. In my case, the tryptophan helped me the most.
3. For anxiety, I took GABA, an amino acid precursor for dopamine that helps to reduce anxiety and stress—600-3000 mg per day at different times than the L-tryptophan.
4. I used Ultra H-3 twice daily between meals (morning and afternoon) to maintain my emotional equilibrium throughout the day. The bilberry ingredient helps to strengthen the walls of blood vessels and act as a potent anti-inflammatory while the ginkgo biloba is well regarded to aid restricted circulation throughout the body and can penetrate the blood-brain barrier."

-Edge On Health, Dr. Ann Louise Gittleman